walking spina bifida adults

Tanti Al Zember

3 min read

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18-10-2024

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Walking with Spina Bifida: Understanding the Challenges and Possibilities

Spina bifida, a birth defect that affects the spinal cord, can present a range of challenges for individuals, including potential mobility limitations. While some individuals with spina bifida may require wheelchairs, others can walk with varying degrees of assistance. This article explores the unique experiences of adults with spina bifida who walk, delving into the challenges they face, the adaptations they utilize, and the potential for successful mobility.

What are the Challenges Faced by Adults with Spina Bifida Who Walk?

Individuals with spina bifida who walk often experience unique physical challenges due to varying degrees of nerve damage in their legs and feet. Some common challenges include:

• Muscle Weakness and Paralysis: As outlined in a study by The Role of Functional Electrical Stimulation in Children with Spina Bifida by Dr. M.F. H. S. B. Hossain and colleagues, muscle weakness and paralysis in the legs and feet are common in individuals with spina bifida. This can affect walking ability, requiring adaptive aids and assistive devices.
• Balance and Coordination: A study published in the journal Developmental Medicine & Child Neurology by Dr. O. Pérez-Cruzado and colleagues highlights the challenges individuals with spina bifida face with balance and coordination. This can lead to increased risk of falls and difficulty navigating uneven surfaces.
• Pain: Chronic pain is a frequent concern for individuals with spina bifida. A study published in Spinal Cord by Dr. H. M. MacLellan and colleagues explored the prevalence and impact of pain on individuals with spina bifida. This pain can be caused by muscle spasms, joint problems, and nerve damage.
• Fatigue: Walking can be physically demanding for individuals with spina bifida, leading to increased fatigue. This can limit their ability to participate in daily activities and enjoy a full social life.

How Can Adults with Spina Bifida Adapt to Walking?

Despite these challenges, many adults with spina bifida successfully navigate the world on their feet. Here are some common adaptations and strategies:

• Assistive Devices: A variety of assistive devices can help individuals with spina bifida walk, such as:
  • Braces: These provide support and stability to the legs and ankles.
  • Canes and walkers: These provide stability and balance while walking.
  • Crutches: These can be used for short distances or for additional support.
• Physical Therapy: Regular physical therapy can help strengthen muscles, improve balance and coordination, and manage pain.
• Adaptive Footwear: Specially designed footwear can provide extra support, cushioning, and stability, accommodating for foot deformities.
• Assistive Technology: Devices like electric wheelchairs, scooters, and specialized vehicles can be used for longer distances or when fatigue becomes a concern.

The Importance of Support and Community

Living with spina bifida can be challenging, and having a strong support system is crucial. Connecting with others who have similar experiences can foster a sense of belonging and provide valuable insights and encouragement.

The Future of Walking with Spina Bifida:

Advancements in technology and medical research offer hope for improved mobility and independence for individuals with spina bifida. Continued research into assistive devices, personalized therapies, and potential treatments for nerve damage are all promising avenues for a brighter future.

Conclusion

Walking with spina bifida requires strength, determination, and adaptation. While the journey may not always be easy, with the right resources and support, individuals with spina bifida can lead active and fulfilling lives. It's important to remember that every individual's experience is unique, and open communication with healthcare professionals and access to appropriate resources are key to managing the challenges and maximizing potential.